Spinal Muscular Atrophy: An Interprofessional Approach 

Program Overview

Spinal muscular atrophy (SMA) is a devastating genetic neuromuscular disorder that causes a progressive loss of motor neurons in the spinal cord, resulting in severe muscle weakness. SMA onset is generally discovered in infancy or early toddlerhood, as children fail to meet their basic motor milestones, like rolling over, sitting up, and crawling. Historically, this debilitating condition was only treated with supportive care and its more severe forms were often fatal within the first 6 months of life if left completely untreated. However, now there are 3 disease-modifying therapies available for SMA, all of which are very different in their approach to management. Because of the various challenges patients with SMA face, along with the advent of diseasemodifying therapies, a multifaceted interprofessional care team approach is necessary for treatment regimen optimization, including treatment selection and integration, care coordination and navigation, and patient education. In this activity, a multidisciplinary and interprofessional panel of experts discuss their approach to SMA from a neurological, physical/rehabilitative, nursing, patient, and parent perspective in their discussion of disease, treatment, case studies, counseling points, and the tears and triumphs of lived experiences. 

0.75 CE Credit(s)
Expires: November 15, 2024

Target Audience

Neurologists, pediatric neurologists, pediatricians, internal medicine physicians, physical medicine and rehabilitation specialists, nurses, and PAs

Educational Objectives

Upon completion of this activity, participants should be better able to:

  • Integrate the unique roles of the interprofessional care team to optimize care for patients with spinal muscular atrophy (SMA)

Activity Faculty

Battista 1200x1500 2023

Vanessa Battista, DNP, MBA, MS, RN, CPNP-PC

Senior Nursing Director, Palliative Care
Dana-Farber Cancer Institute
Boston, MA

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Susan Apkon, MD 

Fischahs Chair, Pediatric Rehabilitation
Chief, Department of Rehabilitation
Children’s Hospital Colorado
Professor and Vice Chair, Department of Physical Medicine and Rehabilitation
University of Colorado School of Medicine
Aurora, CO

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Diana Castro, MD

Board Certified Neurologist and Neuromuscular Physician
Founder and Director, Neurology and Neuromuscular Care Center
Founder and Director, Neurology Rare Disease Center
Denton, TX

Educational Resources

Supporter Statement

No commercial support is provided for this accredited continuing education activity.

Provider Statement

This activity is provided by RMEI Medical Education, LLC

Disclosure of Financial Relationships

RMEI Medical Education, LLC (RMEI) requires instructors, planners, managers, and others in control of educational content to disclose all their financial relationships with ineligible companies over the previous 24 months. All identified financial relationships are thoroughly vetted and mitigated according to RMEI policy. 


Diana Castro, MD, has relevant financial relationships with Biogen, Biohaven, Cure SMA, Edgewise Therapeutics, Genentech, Novartis, Sarepta Therapeutics, Scholar Rock, Inc. (Grant/Research Support).

Susan Apkon, MD, has relevant financial relationships with Biogen, Biohaven, Capricor, Dyne Therapeutics, FibroGen, Sarepta Therapeutics, Scholar Rock (Researcher).

Vanessa Battista, DNP, MBA, MS, RN, CPNP-PC, has relevant financial relationships with Biogen (Speaker, Speaker’s Bureau).

Patient and caregiver participating in this activity have no relevant financial relationship(s) with ineligible companies to disclose.

All of the relevant financial relationships listed for these individuals have been mitigated according to RMEI policies. 

Planners and Managers

RMEI Medical Education, LLC planners and managers have no relevant financial relationship(s) with ineligible companies to disclose.

Joint Accreditation Statement 

In support of improving patient care, RMEI Medical Education, LLC is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.


Credit Designation

Physician Continuing Medical Education 
RMEI Medical Education, LLC designates this enduring material for a maximum of 0.75 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Continuing Nursing Education 
The maximum number of hours awarded for this Continuing Nursing Education activity is 0.75 contact hour(s).

Interprofessional Continuing Education 

This activity was planned by and for the healthcare team, and learners will receive 0.75 Interprofessional Continuing Education (IPCE) credit for learning and change.

Method of Participation and Request for Credit

In order to receive credit, participants must review the activity content and successfully complete both the post-test and evaluation. You must score 100% on the post-test to receive credit for this activity. If you have questions about this activity, please contact RMEI at [email protected]. 

Users must: 

  • Read the learning objectives and faculty disclosures 
  • Participate in the activity 
  • Complete the activity evaluation

There is no fee to participate. 

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*The expense for this gift card is solely funded by RMEI Medical Education, LLC. 
No supporter funding was used for the expense of this gift card. 

Rules and Regulations 
This sweepstakes is managed by RMEI Medical Education, LLC (RMEI), a jointly accredited provider. The winner will be selected via automated random drawing on a quarterly basis from among all eligible entries and notified through the contact information provided. In accordance with our privacy policy, we do not share your information with any third parties. By entering the sweepstakes, you grant RMEI permission to use your e-mail address to reach you for notification and prize fulfillment. Only individuals who complete the evaluation forms and provide contact information will be eligible to win. Open to those who have a US postal address and who are 18 years or older. Only one prize per person and per household will be awarded. The prize will be a $100 Amazon gift card.   

Disclosure of Unlabeled Use

This educational activity may contain discussion of published and/or investigational uses of agents that are not indicated by the FDA. The planners of this activity do not recommend the use of any agent outside of the labeled indications. The opinions expressed in the educational activity are those of the faculty and do not necessarily represent the views of the planners. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings. 

Disclaimer Statement

Participants have an implied responsibility to use the newly acquired information to enhance patient outcomes and their own professional development. The information presented in this activity is not meant to serve as a guideline for patient management. Any procedures, medications, or other courses of diagnosis or treatment discussed or suggested in this activity should not be used by clinicians without evaluation of their patient’s conditions and possible contraindications and/or dangers in use, review of any applicable manufacturer’s product information, and comparison with recommendations of other authorities. 

Copyright Statement

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