When Small Steps are GIANT LEAPS: Treating Spinal Muscular Atrophy

Program Overview

Raul’s mother insisted something was wrong, but the pediatrician assured her he was healthy and fine. After a few physical therapy sessions and testing, he was referred to a neurologist and diagnosed with spinal muscular atrophy (SMA). Today we feature Raul, his mother, his neurologist, and an interprofessional panel to discuss SMA, its biomechanical and orthopedic complications, choosing between disease-modifying therapies, and how, when it comes to the interprofessional care of patients with SMA, it truly takes a village.

Credit Expired
0.50 CE Credit(s)
Expires: February 24, 2023

Target Audience

This activity is intended for neurologists, pediatric neurologists, physical medicine and rehabilitation specialists, orthopedists, nurses (RN/NP/APN), PAs, and other clinicians involved in the care of patients with spinal muscular atrophy (SMA).

Educational Objectives

Upon completion of this activity, participants should be better able to:

  • Implement evaluations and treatments for the complications of spinal muscular atrophy (SMA)
  • Select individualized disease-modifying therapy for patients with SMA
  • Integrate the unique roles of the interprofessional care team in concert with consensus guidelines and best practice recommendations for management of SMA

Activity Faculty

Castro, Diana_Headshot

Diana P. Castro, MD

Associate Professor, Pediatrics and Neurology
University of Texas Southwestern
Children’s Health
Dallas, TX

Susan Apkon_2019

Susan Apkon, MD

Fischahs Chair, Pediatric Rehabilitation
Chief, Department of Rehabilitation
Children’s Hospital Colorado
Professor and Vice Chair, Department of Physical Medicine and Rehabilitation
University of Colorado School of Medicine
Aurora, CO

Vanessa Battista Photo

Vanessa Battista, DNP, MBA, RN, MS, CPNP-PC, CHPPN

Nurse Practitioner, Pediatrics
Philadelphia, PA

This educational activity may contain discussion of published and/or investigational uses of agents that are not indicated by the FDA. The planners of this activity do not recommend the use of any agent outside of the labeled indications. The opinions expressed in the educational activity are those of the faculty and do not necessarily represent the views of the planners. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings. 

Participants have an implied responsibility to use the newly acquired information to enhance patient outcomes and their own professional development. The information presented in this activity is not meant to serve as a guideline for patient management. Any procedures, medications, or other courses of diagnosis or treatment discussed or suggested in this activity should not be used by clinicians without evaluation of their patient’s conditions and possible contraindications and/or dangers in use, review of any applicable manufacturer’s product information, and comparison with recommendations of other authorities. 

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